A social media platform these days can be
problematic. Not only because celebrities are somewhat forced to share their
opinions on a variety of subjects they know little about, but because they inevitably
give them, even if they have no idea what they’re talking about. For some reason,
a large percentage of the public tends to believe whatever asinine thing they
say, despite their complete lack of expertise. As an autistic, I’m particularly
sensitive to this. In part, because neurodivergents are regularly attacked and
endangered by these unproven statements, but it’s also in large part because my
traits are such that I despise bad information and unfair practices. Fairness
and justice are a big deal to me.
Lies and disinformation, even if unintentional,
are harmful. The spreading of misinformation results in people dying. That may
seem like an exaggeration to those who are privileged enough to never have been
subjected to these situations, so I feel it is necessary to illustrate my point
with some examples.
LGBTQ+ people have been subjected to hate
and ‘street justice’ for their differences from the majority of society, for
centuries. This prejudice increased with the actions of the American Psychiatric
Association (APA) which labeled homosexuality a psychosis some time ago. In the
mid-1900s a psychologist did a study which proves this was not the case. The
APA refused to remove the label of psychosis until 1987.
The World Health Organization (WHO) didn’t remove it until 1992.
Electroshock therapy was used until gay
people vomited, and they were forced into going on dates with the opposite sex.
In other words, they were tortured and told they didn’t know what they were, by
people who couldn’t possibly have known such things without being psychic, and
then they were forced to behave according to the conventions contemporary society
wanted displayed.
Stonewall is just
one result of that. The ~700,000 people who died of AIDS (in the US alone), is another result. The prejudice against gay people led the Reagan
administration to ignore a major health crisis. It wasn’t until Reagan’s
daughter came out as a lesbian (and Ronald Reagan became terminally ill) that Nancy Reagan changed her tune, but by then it was too late. They treated these
people as if they deserved to die for their ‘life choices’. While Mike Pence
was Governor of Indiana, his prejudice against LGBTQ+ people led to a large outbreak
of AIDS, which was badly mismanaged.
Even if homosexuality were a psychosis,
they would still have no choice in their actions, but people are blamed for
their mental health challenges, no matter what they are. The prejudice against
anyone with a psychosis has always been a problem. The word ‘psychosis’ is
deemed to be synonymous with dangerous.
It took the APA until June 2019 to apologize for their actions against the LGBTQ+ community.
The same thing happened with transgender
people. The APA labeled it a psychosis. Trans people have been subjected to
cruelty and murder for their differences, just as LGBTQ+ have been. They cause
no harm to anyone, and are far less likely to commit acts of violence than the
population at large, but are subjected to violence on an ongoing basis. Searching
for trans violence sources on the internet results in a plethora of studies on
violence against them, rather than displayed violence. The reason for this is
simple. They have been singled out by the APA, and the non-trans population was
thereby given permission to single them out for abuse and discrimination. 22 trans
people in the US were killed
in 2019 alone. Nearly all of them were black transgender women, so racism is
also likely a factor, but bigotry is still bigotry.
I won't even get into the JK Rowling debacle, for which she seems to have left Twitter.
It wasn’t until the APA released DSM-5 in
2013 that ‘transgender’ was officially removed as a psychosis and they were
recognized as knowing who and what they are. Apparently their 2019 apology
encompassed trans people as well. However, the damage was already done…once
again.
This infantilizing and patronization of
human beings by the APA has led to violence and murder. Repeatedly. Now they’re
doing the same thing to autistics, and celebrities are lapping it up. William
Shatner is only the latest in a long line of celebrities spreading
misinformation about autism, and it pains me to admit one of the worst for
spreading lies about autism is another Canadian; Jim Carrey, along with
his former partner, Jenny McCarthy Wahlberg, has been spreading vaccine
misinformation for a very long time, claiming the work of former physician Andrew Wakefield
proved vaccines caused autism. Work for which he later lost his licence to
practice, because he concealed his funding and manipulated the data to ‘prove’
his theory for his patrons. Anyone can buy a study, apparently, so one always
has to look at the funding sources.
Many studies have been conducted since
Wakefield’s shameful work, and they have all debunked his hypothesis. But the
damage was done there, too. The anti-vaxxer movement was born and we suddenly
started having measles outbreaks.
We also started seeing a lot more hate for
autistics. We’ve been told autism is a disease and a disorder. We’re told
constantly, by people we once admired, that we’re a drain on society and should
be kept from view of the public. The premier of the province of Ontario, Doug Ford, is one such public figure. He’s claimed autistics bring violence into
neighbourhoods, among other heinous statements.
When autistics who can speak actually speak
out for autistics, we’re told we couldn’t possibly know what we’re talking about,
and that we don’t know what’s in our own brains. We’re told we’re audacious
because we speak for fellow autistics who are non-verbal, such as the latest
tweets by Bill Shatner. ‘Yet another high-functioning autistic thinking they
can speak for non-verbal autistics.’ (I’m slightly paraphrasing, as I’m not
interested in promoting his account by grabbing the actual tweet. You can look
it up on Twitter if you don’t believe me, however.)
My response? Yet another white, male,
cisgender, ableist celebrity who’s arrogant enough to tell us who we are. This
is a man who will never understand prejudice. He converted to Judaism, rather
than being born into it, so he didn’t experience the anti-Semitism many Jews
have experienced. None of Shatner’s co-stars from Star Trek seem to like him
very much, though, so I guess I’m not alone in my disgust of him. In 1998, according to IMDb, James
Doohan said, “I wish I could say that Bill is a nice man, but he isn’t.” He
also said, “I like Captain Kirk, but I can't say that I'm very fond of Bill
Shatner.” Shatner refused to appear on stage with George Takei at Doohan’s last
convention, and while Leonard Nimoy sponsored Shatner’s conversion to Judaism,
the friendship later soured to the point where Shatner did not attend Nimoy’s funeral, due to Shatner filming Nimoy without his
permission and including the footage in a documentary about Star Trek captains.
Nimoy had already refused to be in the production, and Shatner’s arrogance led
him to ignore his friend’s refusal. Clearly, Shatner exhibits a behavioural
pattern to suggest he believes his own wishes trump the personal rights of
others. Even Walter Koenig has issues with him. If it weren’t for the fact he still has a huge
platform, I wouldn’t bother with mentioning him, since no one seems to like him
anyway. His verbalizations indicate we should maybe just remove the last three
letters from his surname, because that’s the kind of thing that falls out of
his mouth.
As an autistic, I can tell you far better than
a neurotypical person how another autistic might be thinking. I can describe
what goes on in my brain quite well, and I can fully relate to what other
autistics are thinking and doing. I watch non-verbal kids as they play with
light and shadow, and I remember the feeling of watching pretty lights and
getting dazzled by them, soothed, lost in their beauty and magic in a way
non-autistics will never understand. While I don’t spit or play with fluids, I
have similar sensory behaviours. I touch fabrics that are particularly soft,
and I stroke them repeatedly. I pet my ferrets. My feet move back and forth on
my bed sheets, because it calms me and helps me sleep. And also because it just
feels good. Not in any sexual way, but as a sensory experience. I’m very
tactile, but extremely selective about it because of my sensory issues.
I watch parents struggle with their
non-verbal autistic children, and I grow frustrated with the lack of
information they’re getting. They really don’t know how to work with their kids,
and there are some very simple things they could be trying (such as musical
interaction and interacting in such a way as to understand the world their
child is seeing). Instead they’re told to put their children into ABA, which is
behavioural adjustment that results in nothing more than a temporary fix. It’s
also well-known to autistics as a form of torture. They tried it on gay and
trans people, too. It’s called conversion therapy.
There is no evidence to support the
hypothesis that ABA works for anything more than the short-term, as the latest, admittedly less cruel, version of it has only been practiced for a short period of time. It instills
a heavy load of guilt and shame no autistic should be carrying. We cannot
change. We can only work with who we are. Dogs don’t become cats, gay people
don’t become heterosexual, and autistics don’t become neurotypical. It used to be worse, with 40 hours a week of intensive 'therapy' to 'fix' autistics. We are not broken. We just are.
We can, however, learn to communicate through other means, such as music. One child learned to speak through the song "Old Town Road" by Lil Nas X and Billy Ray Cyrus. It baffles me why this method is semingly never used. Singing along to a song is by far a more fun way to learn to speak, and fun is the best way to get an autistic to cooperate. Many of us simply refuse to speak because we do not wish to, and frankly that's our right.
Autistics are regularly experimented on
without our consent. It’s a violation of our human rights in both the US and
Canada, and no one is doing anything about it. We autistics are terrified and
traumatized by society’s reaction to us. And it doesn’t help that defense
attorneys are attempting to use autism as a defense for mass murder. It’s
happened in the US for mass shootings, and in Canada most recently with Alex Minassian, the man behind the van attack on a Toronto street. They’re
trying to say his extreme autism means he doesn’t know right from wrong. He
clearly does know the difference. He just doesn’t care. Sociopathy or
psychopathy is the more likely explanation. It has nothing to do with autism,
specifically, but rather a comorbidity that can potentially come with it. I
have ADHD and OCD traits as comorbidities.
Psychologists telling people that autistics
kill is going to get the rest of us killed. Celebrities telling autistics we
don’t know our own minds isn’t helping anything. We’re being gaslit in every
conceivable way.
The solution? Psychologists actually
listening to autistics.
But that is not happening. We’re being
labeled psychotic and dangerous, and it’s showing up in courtrooms, where
precedents are set. We aren’t being asked who we are. We’re being told who we are. No one has the right to
do that, but the ‘autism’ label has somehow made these people feel they have
permission to dissect us in the most public and humiliating ways possible. We’re
being talked down to by celebrities with platforms on social media who are
under the mistaken belief they’re qualified to do so.
Many autistics are so intelligent they
qualify for entrance into Mensa. Actors think they’re smarter and better
educated.
When the APA decided to roll people with
Asperger’s into the autism spectrum in their diagnostic manual, major problems
started cropping up. They didn’t bother to ask autistics about their thoughts
on the matter. They didn’t bother to ask anyone with Asperger’s. They simply
decide to lump us together, uncaring about the damage they might do to all of
us.
The public at large does not understand autism.
The majority of people think it’s a single arc, with verbal and so-called ‘high-functioning’
autistics on one end, and non-verbal and ‘low-functioning’ autistics on the
other. That isn’t how it works. There are many bands on that spectrum. Some of
those bands include verbal skills, others include life skills. Some bands
correlate to creative ability, etc. A non-verbal autistic can be a musical
genius, whilst a verbal autistic can be terrible at life skills and social
interaction.
Every autistic is unique, just like
neurotypical people. Labels have turned us into a race of people who are then
subjected to bigotry. Autistics don’t all look alike, just like people of
colour do not look the same. Bigotry in any form is fear. People fear that
which is different, until they understand it and realize it isn’t a threat.
However, we have been labeled a threat. Now what? Are we going to be rounded up
and put into concentration camps?
Parents who cannot handle their autistics
children are looking for solutions, and institutionalization is one action they
sometimes default to. It isn’t a solution. It’s a way to get away from the
exhaustion they’re feeling. And it’s a way to make sure their child is looked
after if they die. It doesn’t improve anything for the child, and in all
likelihood makes it worse for them.
Parents want to ‘cure’ their child. But, it’s
not a disease, and it’s a bloody insult to call it one. Autism is part of our
entire genetic structure. It involves a thinner myelin sheath, which means we have
less insulation on our nerves (an electrical system, so that may indicate the
nature of the difficulties we face with communication just within our own
brains) and tendons. We’re born with it, and the signs can begin to show very
early if a parent is observant. There have been studies to indicate deficiency in DHA may be a
trigger. DHA is a type of fat found in meat.
Pregnant women who are vegan may not be
consuming enough DHA, and the first two years of a child’s life are important
for consuming fat, as well. The brain requires it. Constant dieting has led us
to a point where parents are not allowing their children to eat enough healthy
fat. Doctors have recommended homogenized, full-fat milk for children under the
age of two for decades now, because their brain requires it for proper
development. When I had my own daughter more than thirty years ago, they were
already recommending full-fat milk. I made sure she got it.
While many children are diagnosed around
the age of two, the traits will have manifested before then. Otherwise, parents
would not have taken the extreme step of having their child diagnosed. It is,
after all, a very expensive thing to do. In Ontario, it costs anywhere from
$3,000 to $5,000 to get an autism assessment. And that’s in a place with
healthcare insurance. That amount is astronomical to most young parents. So
they wait until they can get assessed through the province. In Ontario the
waiting list was about two years prior to the commencement of the COVID-19
pandemic. It will be much longer now. In other words, people are correlating
the diagnosis with vaccines simply because the diagnosis occurs around the same
time children receive certain vaccines. Correlation is not causation, and society would do well to remember that. Making
these assumptions has hurt not only autistics, but children who have
subsequently contracted nearly-eradicated diseases that experience a resurgence
when parents refuse to vaccinate their children.
Fear drives these issues. Parental fear for
their children, societal fears about safety, political fears about elections
where politicians use autism as part of their platform, and celebrity fears
about things they don’t understand. None of these fears are based on scientific
evidence. And, of course, confirmation bias is something of a problem. People find
sources that confirm their beliefs, rather than looking at evidence presented
from all sources to determine the most likely point of truth.
One additional comment from William Shatner
had to do with people telling him to stay in his lane, and was his response that (paraphrasing again) only people under thirty would use that phrase. Seeing as many of Donald Trump’s
cohorts use that term, and many, many people of my own generation also do so (unrelated to Trumpism),
he’s off-base on yet another assumption.
Neurotypicals do not understand neurodivergents.
Psychologists and psychiatrists think they understand us without bothering to
ask if they’re right.
So, speaking as a 49-year-old autistic
woman, who very clearly has had an online presence for many years and is a real person who writes real books, William Shatner, stay in your lane. You’re hurting autistics in a way you can’t even
understand because you’ve never experienced real hate and prejudice. You are
more of a danger to society than any autistic, due to the garbage you speak. No
one is threatening your life for
something you have no control over. Autistics are already being abused and killed.
We don’t need more ‘help’ from celebrities.